A Community Directory
Indiana NOFAS maintains this resource directory of articles, research, training and other information. This directory also contains contact information for FASD-friendly professionals and programs such as diagnostic clinics, therapists and support groups.
Resource Additions
We “crowdsource” our resource directory. If you have suggestions to be included, especially “FASD friendly” doctors, clinics, and other service providers, please let us know using this form.
Resource Corrections
We do our best to maintain accurate resource information. If you find any corrections, please let us know using this form.
Instructions
Viewing & Filtering Resource Directory
- Resources can be viewed by Audience, Topic or Type. Use the site menu or the green “View by…” buttons to switch views.
- Within each view, resources can be further filtered by clicking on the blue boxes.
- Note that each resource may be assigned to one or more audience, topic or type
Viewing Individual Resources
- Resources are listed alphabetically.
- Click on the + to see a short description of the resource.
- Click on READ MORE to see the full resource
Viewing FASD-friendly Service Providers
- Click on the blue Service Provider button
We are working to grow our list of FASD friendly providers around Indiana. If you have any additions or corrections, please send them to us!
1. Alcohol is a teratogen that readily crosses the placenta and damages the central nervous system and other organs and may impair prenatal and postnatal growth (Fitzpatrick & Pestell, 2016) 2. When a mother consumes alcohol during pregnancy, the blood alcohol of the fetus is the same or higher than ...
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Children and teenagers with FASD require specific supports that are unique from other developmental disabilities and conditions. Many educators and school personnel have not been trained on these specific needs. If a parent has sent you this video, they are trying to provide you with tools that can help you ...
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This 21-minute animated video introduces the topic of Fetal Alcohol Spectrum Disorders (FASD) and demonstrates key strategies that have been proven to help students who experience brain-based disorders become more successful in school and in life. Scenarios depicted in this video represent both secondary and elementary situations. Join Mario as ...
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Addiction and Pregnancy: A Guide for Mothers Pregnancy should be an exciting and empowering time in a woman’s life. Unfortunately, addiction and mental health problems can compromise a woman’s safety and well-being. There’s hope for recovery, though. Help is available for pregnant women who are suffering from addiction. DrugRehab has ...
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In a recent post, we introduced you to Jeff Noble who shared a powerful personal story of hope. We have another similar story to share today! Jeff is a helper, a leader and an innovator. His focus is FASD, but his expertise is building community through social media. Using an ...
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In a recent post, we introduced you to Jeff Noble who shared a powerful personal story of hope. We have another similar story to share today! Jeff is a helper, a leader and an innovator. His focus is FASD, but his expertise is building community through social media. Using an ...
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In a recent post, we introduced you to Jeff Noble who shared a powerful personal story of hope. We have another similar story to share today! Jeff is a helper, a leader and an innovator. His focus is FASD, but his expertise is building community through social media. Using an ...
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If you’re pregnant, you’ll need to think carefully about what is safe to eat and drink, and what medicines you can take. Drinking alcohol while pregnant can be harmful to your unborn baby. How much alcohol is safe to drink when pregnant? Whether you are planning a pregnancy, already pregnant or breastfeeding, ...
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Fetal alcohol spectrum disorders might be more prevalent than thought. A recent study found 1% to 5% of first-graders in four communities were affected. To broaden awareness of fetal alcohol spectrum disorders, the Academy is sharing a public service announcement on its YouTube channel, https://www.youtube.com/watch?v=R6Zi2D2u8ZU. The 30-second announcement explains that prenatal ...
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Bridging the Gap with Children to Recovery The Indiana affiliate of the National Organization on Fetal Alcohol Syndrome (INOFAS) is presenting a six-hour workshop designed to address a gap in mainstream addiction treatment programming to provide and support on-going recovery skills. After the detox and stabilization phase of addiction treatment, ...
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Hey folks here's your chance to share what you wish therapists knew about the individual prenatal alcohol exposure you care for. Chris Troutt from The Papillion Center is creating a training for therapists and is seeking input from caregivers. Please consider participating. This is a chance to have a voice ...
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Kristin Wiens (@kwiens62) developed the following infographic to help parents, caregivers, educators and others who work with kids. "Kids do well if they can." ~Ross Greene How can we reframe statements about behaviors to be more inclusive and empowering, and allow kids to do well...because they can! (My guess is ...
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February 01, 2018 01:51 pm Chris Crawford – As part of its support for the Collaborative for Alcohol-Free Pregnancy: Partnering for Practice Change(www.cdc.gov) initiative, the CDC has launched a website featuring free fetal alcohol spectrum disorders (FASD) training and resources(nccd.cdc.gov) for health care professionals, including offerings specific to family physicians.(nccd.cdc.gov) Online training courses(nccd.cdc.gov) currently offered on the site are ...
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The Diagnostic Overview: Recognition and Referral online course has been released and is available from the CDC. Free, online trainings are available for healthcare providers who care for women at risk for an alcohol-exposed pregnancy, and for those who work with individuals living with fetal alcohol spectrum disorders (FASDs). These online ...
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The CDC has a wealth of information on FASD, including: Basic Information Education & Training Articles Multimedia & Tools Free Materials Research & Tracking Data & Statistics Information for Specific Groups ...
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Cerebral Palsy is a name given to a set of nerve disorders which affect muscle coordination and body movement. Each year roughly 10,000 babies are born with cerebral palsy. Cerebral Palsy Group is an online resource for anyone who has been affected by cerebral palsy, brain injuries, or birth injuries ...
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Alcohol use during pregnancy is a major public health problem. One in 10 pregnant women reports alcohol use in the past 30 days. Drinking alcohol during pregnancy can cause miscarriage, stillbirth, and a range of physical, behavioral, and intellectual disabilities for the baby that can last a lifetime. These disabilities are ...
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Alcohol use during pregnancy is a common area of concern for expectant women. Patients receive opinions from relatives, friends, and the internet, about whether or not to drink alcohol during pregnancy. Pregnant women need advice from an expert and consider their health care providers a trusted source of information. As ...
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Dan Dubovsky compares the differences between ODD, ADHD, and FASD ...
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by Theresa Rebhorn Being a parent is the most wonderful—and hardest—job in the world. If you have a child with special needs, your job is no less wonderful, but it can be more complicated. Your child’s education is most likely an area of great interest to you. As a child with a ...
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Participate in DiG FASD About DiG FASD The purpose of the “Dissecting the Genetic Contributions to Fetal Alcohol Spectrum Disorders” (DiG FASD) study is to understand how genetics affects the various features of FASD. To do this, researchers at Indiana University are enrolling children (ages 7 – 17) and adults ...
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Susan Elsworth, Director of INOFAS refers individuals to the Academy of Breastfeeding Medicine to answer the question “Do I have to wait to breastfeed my baby after consuming alcohol. Use of alcohol during pregnancy is strongly discouraged, as it can cause fetal alcohol syndrome, birth defects, spontaneous abortion, and premature ...
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We received the following information about a *FREE* Support Group for families of children with Fetal Alcohol Spectrum Disorders! This is from Double ARC in Sylvania, OH - but is open to all as it's available via the web or teleconference. We have a new way of giving parents and caregivers ...
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Most of you are familiar with the statistic that 50% of all pregnancies are unplanned. This can result in a woman harming her baby before she even knows she is pregnant. CINOFAS supports increasing the proportion of women who plan their pregnancies and engage in healthy behaviors before becoming pregnant to ...
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Research Framework Fetal alcohol spectrum disorder (FASD) is a prevalent neurodevelopmental disability with significant implications for learning and behavior. International research suggests that the prevalence of FASD in school-aged children is 2.3–6.3%. In this paper, we address the questions: (1) what is FASD; (2) what is the prevalence of FASD ...
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Flow Diagram for Evaluation The Flow Diagram was devised to facilitate greater clinical recognition of children with fetal alcohol spectrum disorders (FASD), including fetal alcohol syndrome (FAS), while acknowledging that FASD could and should be recognized in individuals of any age. The AAP working in concert with the Centers for ...
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WAVING A MAGIC WAND: SUPPORTS FOR FAMILIES RAISING SCHOOL-AGED CHILDREN WITH AUTISM SPECTRUM DISORDER AND FETAL ALCOHOL SPECTRUM DISORDER IN ONTARIO Jenna Pepper Kelly D Harding Celisse Bibr Shelley L Watson Keywords fetal alcohol spectrum disorder; autism spectrum disorder; mixed methods; families; support Abstract Background and Objective: The purpose of this ...
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FASD 101 The Indiana affiliate of the National Organization on Fetal Alcohol Syndrome (INOFAS) is presenting FASD 101, an interactive 6 hour workshop to heighten awareness and understanding of FASD. You will learn how prenatal alcohol consumption can affect a child in utero, common disorders on the FASD spectrum and ...
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The Adoption Exchange offers several online training resources related to FASD. An online account will be required to access these resources. The Adoption Exchange is a non-profit 501(c)(3) child welfare organization that was founded in 1983 to help establish safety and permanence in the lives of foster children. If you ...
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There was a part of me that was angry, but I also knew that the police department and the justice system were uninformed about how vulnerable and easily swayed people [with an FASD] are. —Mother whose son with an FASD was wrongly convicted of a crime Why do people with ...
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"Many specialists suggest that a significant number of individuals who come into contact with the criminal justice system have FASD. Only medical professionals are qualified to diagnose FASD, but law enforcement officers must be aware of FASD, its characteristics and behaviours. This is necessary so they can identify and deal ...
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FASD has major implications for just about every aspect of our legal system including our civil, juvenile, and criminal justice systems. There is a critical need for improvement in our legal system as it relates to persons with an FASD and to build the capacity of our courts and related ...
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NOFAS has pulled together a set of general resources on FASD for adults living with FAD. These include: Creating Environments that Support Success Tips for FASD Adults on Daily Routine Strategies and Community Involvement Additional resources for adults living with FASD can be found here on the NOFAS website ...
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NOFAS has pulled together a set of general resources on FASD for educators. These include: “Hey Teacher” Brochure on FASD Video: 8 Magic Keys: Strategies for Students with FASD General Tips for Working with FASD Learners Essential Tips for Teachers Simple Proposals for School Success MOFAS blog: Recommendations for the classroom ...
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NOFAS has pulled together a set of general FASD resources for the criminal justice system. These include: American Bar Association: FASD and Legal Issues FASD Legal Experts, Forensic Experts Fetal Alcohol and Drug Unit FASD and the Justice System, Canada-focus ...
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Janice Coldwater of Adoptions Together shares her perspective on how critically important social workers are in building strong families through adoption. "If parents don't understand that their child is acting the way they do because of what's happening in their brain, it's very easy to get frustrated. The social worker's ...
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FASD Solutions: Education and Behavioral Strategies (60 min.) Hosted by the Indian Health Services (IHS) TeleBehavioral Health Center of Excellence (2017) Presented by Deb Evensen, MA, this webinar helps viewers understand how to identify neurologically driven behaviors and implement interventions to help students succeed. This webinar describes how educators can identify ...
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We are very excited to share the online version of a training that our Director Susan Elsworth has given several times around the State of Indiana titled "Bridging the Gap with Children to Recovery." Bridging the gap with children after addiction, in recovery, is designed to address a gap in ...
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We are very excited to share the online version of a training that our Director Susan Elsworth has given several times around the State of Indiana titled "Bridging the Gap with Children to Recovery." Bridging the gap with children after addiction, in recovery, is designed to address a gap in ...
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Fetal Alcohol Spectrum Disorders (FASD) is an umbrella term that refers to primary developmental effects that are the direct result of in-utero alcohol exposure on the developing brain. These effects, particularly those that affect such brain functions as cognition, learning, emotional regulation, and behavioral control -- tend to be lifelong ...
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In a new JAMA study of more than 6,000 first-graders, researchers estimate that between 1.1% and 9.8% of American children have developmental or neurological problems caused by fetal alcohol spectrum disorders (FASDs)—a significantly higher number than previous studies have reported. And out of the hundreds of children determined in the study to have FASD, ...
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The Adoption Exchange offers several online training resources related to FASD. An online account will be required to access these resources. The Adoption Exchange is a non-profit 501(c)(3) child welfare organization that was founded in 1983 to help establish safety and permanence in the lives of foster children. If you ...
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FASD and Sexually Inappropriate Behaviors Fetal alcohol spectrum disorder (FASD) is a lifelong condition resulting from prenatal alcohol exposure (PAE). The consequences associated with FASD are many and varied, resulting in a host of deficits that can increase the risk of becoming involved in the criminal justice system. Disorders associated ...
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FASD is completely preventable by abstaining from alcohol while pregnant (and while trying to conceive). While pregnant women are accustomed to hearing varying advice on whether it is safe to drink “lightly,” it is important to note that there is no scientific evidence available that sets a “safe” amount of ...
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The CDC has many free, online trainings are available for healthcare providers who care for women at risk for an alcohol-exposed pregnancy, and for those who work with individuals living with fetal alcohol spectrum disorders (FASDs). These online trainings provide strategies to improve the delivery of care related to FASDs ...
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Since 1990, NOFAS has responded to requests for information on FASD. The organization has fielded calls, letters and emails from tens of thousands of concerned individuals seeking information, resources and help about the risks and consequences of drinking alcohol during pregnancy. People who contact NOFAS come from all walks of ...
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The Fetal Alcohol Spectrum Disorders FASD Toolkit was developed by AAP (American Academy of Pediatrics) to raise awareness, promote surveillance and screening, and ensure that all affected children receive appropriate and timely interventions ...
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We're excited to share a video interview from fasdforever.com. It's a conversation between Jeff Noble and R.J. Formanek titled "Flying with Fetal Alcohol." The video appeared originally at fasdforever.com. It's such an amazing of hope that we wanted to include it here in our online directory. We thank Jeff and R.J. for sharing ...
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The Coalition for Children, Youth and Families developed this document to help families who are or are considering fostering children and youth with FASD. From the introduction: "Fetal Alcohol Syndrome Disorder (FASD) is the umbrella acronym meant to describe the prenatal effects that alcohol has had on some people. Spectrum ...
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Free, online parent support group through Double ARC. We are an agency in NW Ohio that supports children and families affected by FASD. Parents and caregivers can join the support group via telephone or video chat. Parents, Get support wherever you are Double ARC hopes you will join them for this *free*, ...
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[E] NOFAS has pulled together a set of general FASD resources for FASD, including including the Eight Magic Keys, and various strategies for all audiences ...
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Trying Differently Rather Than Harder, by Diane Malbin, M.S.W. Fetal Alcohol Syndrome: A Parents Guide to Caring for a Child diagnosed with FASD, by Wake Forest University Fetal Alcohol Syndrome A Guide for Families and Communities, by Ann Streissguth The Broken Cord, by Michael Dorris Damaged Angels, by Bonnie Buxton ...
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Although several diagnostic schemes are available for diagnosis of FASDs, all 4 diagnostic schemes delineate 4 areas of consideration when evaluating for an FASD diagnosis: history of in utero alcohol exposure, dysmorphology, growth retardation, and abnormalities of the central nervous system (CNS). Despite minor differences for inclusion and exclusion at ...
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One of the more difficult things to remember when supporting a person with FASD is that they are almost certainly having difficulty understanding and remembering what you are saying. This video talks about why this is, and gives caregivers some basic first-steps in creating effective interactions. This video was produced ...
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When you parent a foster or adoptive child, it's not always easy to have an accurate or current record of their bio-family's health history, the child's developmental milestones, or their medical history. This can delay correct and early diagnosis of #invisibledisabilities, like #FASD, #ASD, #ADHD, #SPD, etc. The American Academy of Pediatrics recommends that children ...
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Connor* is 12, tall for his age but baby-faced, with freckles, braces and reddish-blond hair. He’s funny and curious and, when in the right mood, talkative. The list of things he likes to talk about includes his friends, his dog, video games (he’s currently trying, without much success, to persuade his mom to ...
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This printable handout can be used by a person with FASD (or their caregiver) to advocate for themselves when working with educators or other professionals. A page with targete3d tips and suggestions are include for a variety of personal situations: I’m pregnant...of course I want a healthy baby…but: I am ...
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KEY POINTS NAS is a group of conditions caused when a baby withdraws from certain drugs he’s exposed to in the womb before birth. NAS most often is caused by drugs called opioids. Tell your prenatal provider about any opioid you take, even if it’s prescribed by another provider. If ...
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Have you or your family experienced alcohol or substance usage during pregnancy? Indiana Center for Children & Families (ICCF) is now accepting individuals and families who are looking for therapy options. Their services include a range of topics including: child abuse treatment foster/adoption adjustment children’s social, emotional and behavioral treatment individual & family ...
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NOFAS produced this short video featuring ObGyn Dr. Alexis Gimovsky talking about the importance of asking pregnant women about alcohol use. Dr. Gimovsky, who is herself pregnant, emphasizes the message from ACOG, that pregnant women are advised to abstain from all alcohol ...
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Confused or frustrated by your child’s behavior? Looking for ways to help your child succeed in school and life? Has your family member been diagnosed with an FASD or do you suspect prenatal alcohol exposure? Triumph Today, is just what you need. Developed by Double ARC, nationally recognized experts in the ...
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The rise in opioid prescriptions, particularly in pregnant women, needs to be balanced with a knowledge of risk factors. A study reviews the risks of opioids and pregnancy. The use of opioid pain relievers has increased dramatically over the past twenty years, leading many to call it an opioid epidemic. Particularly ...
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The National Institute on Drug Abuse maintains resources for clinicians to help them treat opioid-dependent pregnant women, mothers, & infants. These can be found on their website ...
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Riley's Children Health at Indiana University Hospital offers an Outpatient Opioid Treatment program. The following information is taken from their website, which can be found directly at https://www.rileychildrens.org/departments/outpatient-based-opioid-treatment-program. They offer information on: Doctors & Locations Program Forms & Resources Related Departments For Health Professionals If you or a loved one is ...
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Parenting a Child with FASD When a pregnant woman drinks alcohol, it can harm her developing baby's brain, even before she realizes she is pregnant. This can result in Fetal Alcohol Spectrum Disorders (FASDs), a term used to describe a range brain-based challenges and disabilities caused by prenatal exposure to ...
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The Society of Special Needs Adoptive Parents (SNAP), a non-profit, provincially-funded organization in British Columbia, produced the first edition of this booklet in response to many requests from parents and professionals caring for children affected by Fetal Alcohol Syndrome (FAS) and other alcohol-related birth defects (ARBD, ARND). The booklet covers ...
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OBJECTIVES: To determine the prevalence and characteristics of fetal alcohol spectrum disorders (FASD) among first grade students (6- to 7-year-olds) in a representative Midwestern US community. CONCLUSIONS: Children who have FASD are more prevalent among first graders in this Midwestern city than predicted by previous, popular estimates ...
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The March of Dimes has prepared this overview regarding the use of prescription medicine for women who may become pregnant, are pregnant or are still breastfeeding. KEY POINTS A prescription medicine is one your provider says you can take to treat a health condition. You need an order from your ...
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The March of Dimes has prepared this overview regarding the use of prescription opioids for women who may become pregnant, are pregnant or are still breastfeeding. KEY POINTS Prescription opioids are painkillers often used for pain after an injury, surgery or dental work. They include codeine, morphine and oxycodone. If ...
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NOFAS presented a webinar on “Resources for Families Living with FASD: What’s Out There?” with lots of useful practical information on resources and services for people living with FASD ...
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Edward Aull, M.D., Behavioral Pediatrician 13450 N Meridian Street Suite 354 Carmel, IN 46032 Phone: (317) 582-7654 Fax: (317) 582-7660 Contact: Edward Aull Specializes in ADHD and autism; he sees patients with FAS/FAE from Indiana and nearby states ...
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March 2018 is Social Work Month! Social workers play an incredibly important role in working with individuals living with FASD and their families. Please read these personal stories from social workers and families sharing their experiences. This project is a collaboration between The National Organization on Fetal Alcohol Syndrome (NOFAS) and The ...
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A 37 minute audio/video overview of special education created to help parents of children with disabilities understand what special education is, how a child might get into special education, how to resolve disagreements, and what role parents play. Credit / Sources Developed by PACER Center, it is funded in part ...
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Booklet for Parents, Other Caregivers, and Professionals The information presented in the attached booklet represents a collaborative venture of community agencies providing services to individuals and their families with Fetal Alcohol Spectrum Disorders (FASD) as well as foster and adoptive parents. The booklet is designed for parents, other caregivers, and ...
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Students Like Me: A pathbreaking video guide for educators teaching children with Fetal Alcohol Syndrome Over the past few years, practical research has been revealing more about the nature of learning challenges faced by children with alcohol-related birth defects. As a result, strategies are emerging to help children in both ...
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Step one is understanding the terminology and basic overview of FASD, and that living with the effects can be quite challenging on a daily basis. We will offer generic comments around medication, education, and conceptual theories used in parenting as these areas are best addressed by specialist in their field ...
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School psychologists and school counselors are key players in the success of students who are experiencing learning challenges. With connections to classroom teachers, parents and other primary caregivers; evaluative tools and skills; and influence on the child’s educational programming, you are in a unique position to put solutions into place ...
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Participate in DiG FASD Help improve the lives of people with FASD. Participants who complete the study receive $50. About DiG FASD The purpose of the “Dissecting the Genetic Contributions to Fetal Alcohol Spectrum Disorders” (DiG FASD) study is to understand how genetics affects the various features of FASD. Everyone ...
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THE FOUR PILLARS of FETAL ALCOHOL SPECTRUM DISORDER SUCCESS What Every Care Giver Must Know to Survive the Hardest Job in the World Jeff Noble is an FASD Educator and Advocate from Ontario, Canada. Passionate about teaching FASD caregivers, professionals and allies, he shares everything he knows through his own stories of ...
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We found this resource online: "Overlapping Behavioral Characteristics of FASD and Related Mental Health Diagnoses in Children." "I have found this to be the MOST valuable tool to help educate those working with my children and adults. At all my kids IEP's I have provided a copy to every team ...
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TAKE CARE OF YOURSELF – This is critical. The demands of caring for an individual with FASD are relentless and require unfathomable stamina. You are NOT being selfish craving out intentional time for yourself. When we are not in the best physical, psychological, emotional shape we scan be in, our ...
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Spring, 2019: FASD and the Brain-Based Approach: for parents and professionals. Evening session: Mondays, 7-9 pm, ET, March 11, 18, (skip the 25th), April 1, April 8, April 15 Daytime session: Thursdays, 12-2 pm, ET, March 7, 14, 21 (skip the 28th), April 4, April 11 Webinars are presented LIVE but ...
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Treatment and Support for Individuals Affected with FASD The following article was first shared by NOFAS. Click here to see additional resources, tools, materials, DSM & ICD coding and benefits of treatment and support. Receiving a formal FASD diagnosis and having a firm understanding of that diagnosis can help families set ...
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Understanding Addiction for Caregivers The Indiana affiliate of the National Organization on Fetal Alcohol Syndrome (INOFAS) is presenting a 1-hour workshop designed to help caregivers better understand addiction. Participants will: Learn the difference between use, abuse and addiction Learn how addiction changes the brain and patterns of behavior Learn the ...
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Although drinking during pregnancy has long been considered taboo, new research suggests that as many as one in 20 U.S. children may have health or behavioral problems related to alcohol exposure before birth ...
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Learn about a support group for mothers who have experienced with FASD ...
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Many people with FASD (and many other developmental conditions) struggle with perception, which means they leave situations with different understandings of what took place. When asked about what happened, this difference in perception is often interpreted as lying. But it's not! In this video, we try and understand the concept ...
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This is an educational video targeted to the criminal court and corrections professionals to raise awareness about Fetal Alcohol Spectrum Disorder (FASD), the leading preventable cause of mental retardation, focusing on the impact of prenatal alcohol exposure to brain functioning and subsequent legal implications. This video can be used at ...
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Drinking During Pregnancy Have you heard conflicting messages about alcohol use during pregnancy? Here are answers to commonly asked questions about consuming alcohol during pregnancy and how to have a healthy pregnancy. Remember 049 – zero alcohol for nine months of pregnancy. No Safe Kind Is this serious? What’s the big ...
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Whose Trigger Is It? The Indiana affiliate of the National Organization on Fetal Alcohol Syndrome (INOFAS) is presenting a 1-hour workshop on trauma-based triggers. Participants will explore trauma based triggers, will participate in a discussion to answer the question whose trigger is it and be encouraged to implement self-care strategies. The ...
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